Thursday, March 11, 2010

Stop Spinal Muscular Atrophy!!!


All you have to do is provide your email, name, and b-date the first time but they will not spam your inbox. AND THEN VOTE EVERY DAY unitl March 31. They are currently in 4th place and need to get to 2nd place to win the grant of 250K!

Here's the story:
Yesterday I went to a breakfast with a group of ladies and met a very interesting mom who has a very important message! Her niece has Spinal Muscular Atrophy. You are probably asking what is that? I hadn't heard of it either. The face you see on the widget and Pepsi website is my friend's niece.

Spinal Muscular Atrophy is the number one genetic killer of children under two years old. Symptoms include severe weakness in the entire body. Babies are too weak to roll over, sit up, crawl. Children are too weak to stand or walk. Victims of SMA can lose head control, ability to swallow, ability to make facial expressions. Babies, kids and adults with Spinal Muscular Atrophy have weak lung capacity and which is often the cause of death. A common cold can lead to hospital stays and can cause a child to lose strength they never get back. But to top it all off their brains are fully aware and functioning.

The good news is that research is very promising. Researchers know the gene that causes SMA and the defective gene has a rare "back up" gene, that can be a source of therapy. These two facts makes SMA the neuromuscular disorder closest to a cure according to the National Institute of Health. So let's push SMA research over the finish line.

Please do not ignore this. It is so easy to just vote each day. And you could help change America!

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